Post by Deleted on Feb 6, 2016 2:14:38 GMT 1
Things I like:
Music.
Looking at photos and having memories.
Writing.
I'm still breathing.
Being around my friends and family.
Exploring the world.
Disney. You're never too old for it.
Both tea and coffee.
The beauty of the foreign language.
The scriptures of other languages.
My memories.
Things I dislike:
Arguments for no reason.
People who still judge me as 'gay' because I like theatre, I'm heterosexual...
Racism.
People who automatically assume that everyone in the UK is rich, when in fact, a vast majority barely have anything.
People who just say they "hate" a song for no valid reason.
People who stare at you.
Seeing people crying.
People who really think that we, the British public, were the ones the who sent the soldiers off to the Middle East - we didn't get a vote - if we did, we would have voted NO.
UKIP.
Politics in general.
If you upset me or piss me off (I'll probably end up turning that emotion into me writing a song).
People who think its funny to laugh at someone who's disabled and to name-call that person.
That feeling of being torn apart and you suddenly can't do something.
Death, funeral, having to say goodbye to the people precious to me and grieving.
Feeling lost, tired and fed-up.
Ten things I hate about being epileptic:
1) The emotional and physical trauma your body goes through having Epilepsy is almost unexplainable to people who don't have it.
2) The outside world has no idea the amount of limitations a person with Epilepsy has. In the UK, you can't drive until 2 years clear of seizures - you're not even allowed a provisional license. Some places won't hire you for work and some places are sceptical about you.
3) If you do get a job but have a seizure at work, you suddenly will get so much stigma and isolation. So much, that some companies will try their best to make you eventually want to quit.
4) Not allowed a teacher's license in England, but I'm allowed to study for one in Scotland, Wales or Northern Ireland ... or the rest of Europe...
5) It's frustrating to explain the emotions immediately after a seizure. How drained of energy you feel, how weak your muscles are and how you personally feel useless.
6) Seizures can sometimes happen at any time without any warning.
7) An aura - a strange smell that you get which tells you either you're about to have a seizure or you're medication is stopping your brain from having a one.
8) When people associate the diagnosis of Epilepsy with people of stupidity and low intelligence.
9) When you're referred to as a spastic.
10) Due to new rules in the UK, unlike 2 years ago when I could directly call my Epilepsy nurse or Neurologist Doctor at the Neurology Department at the hospital to explain I've had seizures and feel unwell, they would be able to call back within an hour and advise me what to do. Now, I have to have all things regulated under the supervision of my General Practitioner Doctor, so I have to make a general Doctor's appointment just to say I've had 3 seizures, so can I see my Doctor at hospital and he then has to authorise that ... it's barbaric. The old system was much more useful.
Side note, on the day of me posting this, I have today had 3 seizures - but I still have to make an appointment (with the GP), to make an appointment (with my Doctor at hospital)... what the af?
Music.
Looking at photos and having memories.
Writing.
I'm still breathing.
Being around my friends and family.
Exploring the world.
Disney. You're never too old for it.
Both tea and coffee.
The beauty of the foreign language.
The scriptures of other languages.
My memories.
Things I dislike:
Arguments for no reason.
People who still judge me as 'gay' because I like theatre, I'm heterosexual...
Racism.
People who automatically assume that everyone in the UK is rich, when in fact, a vast majority barely have anything.
People who just say they "hate" a song for no valid reason.
People who stare at you.
Seeing people crying.
People who really think that we, the British public, were the ones the who sent the soldiers off to the Middle East - we didn't get a vote - if we did, we would have voted NO.
UKIP.
Politics in general.
If you upset me or piss me off (I'll probably end up turning that emotion into me writing a song).
People who think its funny to laugh at someone who's disabled and to name-call that person.
That feeling of being torn apart and you suddenly can't do something.
Death, funeral, having to say goodbye to the people precious to me and grieving.
Feeling lost, tired and fed-up.
Ten things I hate about being epileptic:
1) The emotional and physical trauma your body goes through having Epilepsy is almost unexplainable to people who don't have it.
2) The outside world has no idea the amount of limitations a person with Epilepsy has. In the UK, you can't drive until 2 years clear of seizures - you're not even allowed a provisional license. Some places won't hire you for work and some places are sceptical about you.
3) If you do get a job but have a seizure at work, you suddenly will get so much stigma and isolation. So much, that some companies will try their best to make you eventually want to quit.
4) Not allowed a teacher's license in England, but I'm allowed to study for one in Scotland, Wales or Northern Ireland ... or the rest of Europe...
5) It's frustrating to explain the emotions immediately after a seizure. How drained of energy you feel, how weak your muscles are and how you personally feel useless.
6) Seizures can sometimes happen at any time without any warning.
7) An aura - a strange smell that you get which tells you either you're about to have a seizure or you're medication is stopping your brain from having a one.
8) When people associate the diagnosis of Epilepsy with people of stupidity and low intelligence.
9) When you're referred to as a spastic.
10) Due to new rules in the UK, unlike 2 years ago when I could directly call my Epilepsy nurse or Neurologist Doctor at the Neurology Department at the hospital to explain I've had seizures and feel unwell, they would be able to call back within an hour and advise me what to do. Now, I have to have all things regulated under the supervision of my General Practitioner Doctor, so I have to make a general Doctor's appointment just to say I've had 3 seizures, so can I see my Doctor at hospital and he then has to authorise that ... it's barbaric. The old system was much more useful.
Side note, on the day of me posting this, I have today had 3 seizures - but I still have to make an appointment (with the GP), to make an appointment (with my Doctor at hospital)... what the af?